Amyloidosis Organizations
Amyloidosis Support Group www.amyloidosissupport.com
Amyloidosis Foundation www.amyloidosis.org
Myeloma UK www.myelomaUK.org/amyloidosis
International Society of Amyloidosis http://www.amyloidosis.nl/

 

Medical Centres
Mayo Clinic http://www.mayoclinic.org/diseases-conditions/ search
amyloidosis
Boston University Medical Centre http://www.bu.edu/amyloid/
National Amyloidosis Centre – University College London
https://www.ucl.ac.uk/amyloidosis
http://www.amyloidosis.org.uk/

 

Patient forums
http://www.amyloidosisonline.com/
http://www.familialonline.com/
www.smartpatients.com
http://www.bensfriends.org

 

Blogs
There are many patient blogs you can find by googling ‘amyloidosis blogs’
For much current and useful information see Dr. Jeff Zonder’s
http://www.amyloidplanet.com/

 

Newsletters
N.A.C. https://www.ucl.ac.uk/amyloidosis/nac/newsletters
UK search AL Amyloidosis Matters
Clinical trials www.clinicaltrials.gov  search amyloidosis